Exciting News: The Filotimo Foundation is Now on Instagram!January 16, 2025FilotimoNewsDear Friends, We are thrilled to share some exciting news — The Filotimo Foundation is now on Instagram! This new… Read More
How a cystic fibrosis drug given prenatally changed the lives of one Stanford Medicine familyDecember 24, 2024FilotimoNewsThe article tells the story of a Stanford Medicine family who used a new cystic fibrosis (CF) medication, given prenatally… Read More
2025 Filotimo Foundation Fundraising GalaDecember 16, 2024FilotimoEventsPlease join us for the inaugural Filotimo Foundation Gala May 16, 2025 at 6:00pm The Pavilion at the Angus BarnRaleigh,… Read More
Survey Highlights the Burden of Health Care Costs on the CF Community December 14, 2024FilotimoNewsThis article highlights a 2024 survey by the Cystic Fibrosis Foundation and Dartmouth College that exposes the severe financial strain… Read More
Walk for HopeOctober 23, 2024FilotimoEvents36th Annual Thad & Alice Eure Walk for Hope Date: October 13, 2024 • 9:00am-2:00pm Location: Angus Barn In the… Read More
Carrier Screening: A Step Towards Informed Family PlanningOctober 21, 2024FilotimoNewsStarting a family is a thrilling milestone. One important step in this journey is understanding any genetic health risks that… Read More
Newborn Screening in North Carolina: Actionable Information for ParentsOctober 20, 2024FilotimoNewsNewborn Screening Newborns in North Carolina – and all 50 states across the country – are screened for a variety… Read More
Nicole’s Story: Starting a Family While Living with Cystic FibrosisOctober 19, 2024FilotimoNewsNicole “Colie” Kohr is an award-winning author, speaker, and advocate, known on social media as @cystic4real. Through her nonprofit, Colie… Read More
Cystic Fibrosis and IVF: A Journey Towards ParenthoodOctober 18, 2024FilotimoNewsFilotimo Foundation’s partners at Atlantic Reproductive Medicine in Raleigh, NC offer support to men and women living with cystic fibrosis… Read More
