nonprofits making a difference
Baby Quest Foundation
Grants toward IVF, gestational surrogacy, egg freezing, and donor-assisted treatment for people who can’t afford fertility care.
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The Bonnell Foundation
Scholarships, financial assistance, transplant grants, and mentoring to help families find their way through life with CF.
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BreatheStrong CF
Exercise grants, emergency financial assistance, and wellness programs that help people with CF stay active and strong.
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CF Reproductive & Sexual Health Collaborative (CFReSHC)
Patients, researchers, and clinicians working together on sexual and reproductive health research and resources for people with CF.
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Claire’s Place Foundation
Emotional and financial support for children, adults, and families living with CF, including help during extended hospital stays.
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Colie Creations
Founded by a CF patient and lung transplant recipient to advocate for patients through children’s books and storytelling.
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Cystic Fibrosis Foundation
Funding research, drug development, and specialized care so every person with CF can live a long, full life.
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Cystic Fibrosis Research Institute
Research funding plus education, advocacy, and emotional support for people with CF and their caregivers.
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Emily’s Entourage
Pursuing breakthroughs for the roughly 10% of people with rare mutations who don’t benefit from current CF therapies.
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Hope for Fertility Foundation
Grants toward fertility treatment, surrogacy, or adoption for couples across the U.S. facing infertility.
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Project CF Spouse
Education, support, and connection for spouses and partners of people with CF.
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Rock CF Foundation
Programs, events, and stories that help people with CF build their careers, finances, and health for the long run.
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Take A Breather Foundation
Wishes that give children and adults with CF a break from the emotional and financial weight of the disease.
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Vivian Lee Foundation
Grants, support groups, and financial help to ease the daily, emotional, and financial burdens of CF.
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Resource Library
Boston Children’s Hospital’s Cystic Fibrosis Center
While there’s no shortage of great CF resources out there, this is one of our favorites for patients and families.
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2025 Cystic Fibrosis Foundation Patient Registry Highlights
This handout offers key insights from last year’s CF Foundation Patient Registry, which collects data from participants who receive care at U.S. CF care centers. The report highlights annual progress in science, care, community support, and the work still needed to improve outcomes for all people with CF.
Discussing Your Health Needs With Your Employer
This resource offers guidance for discussing your health needs with employers. Whether you’re pursuing a dream job or simply need a job to cover the bills, it’s important to find a workplace that supports your health and well-being while managing cystic fibrosis (CF).
2024 Cystic Fibrosis Foundation Patient Registry Highlights
This handout offers key insights from 2024’s CF Foundation Patient Registry, which collects data from participants who receive care at U.S. CF care centers. The report highlights annual progress in science, care, community support, and the work still needed to improve outcomes for all people with CF.
2023 Cystic Fibrosis Foundation Patient Registry Highlights
This handout offers key insights from 2023’s CF Foundation Patient Registry, which collects data from participants who receive care at U.S. CF care centers. The report highlights annual progress in science, care, community support, and the work still needed to improve outcomes for all people with CF.
Navigating the Complexities of Cystic Fibrosis Care: How Compass Can Help
The Cystic Fibrosis Foundation’s free, personalized Compass service helps individuals and families navigate these challenges while balancing everyday responsibilities.
Carrier Testing How A Person Gets Cystic Fibrosis Infographic
The Cystic Fibrosis Foundation dedicated a section of its website to explaining carrier (genetic) testing, including the role carrier testing plays in the diagnosis of CF and in informing important family planning decisions for people living with the disease.
