The Filotimo Family

We’ve never met a stranger. Adults with CF, social workers, doctors, fertility clinics, friends. They are all part of the Filotimo Family.

Three smiling men posing with their arms around each other beneath the finish line arch at the Lung Run charity event.

CF can be isolating, but you are never alone. Meet the people in our community.

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  • Deanna Sutton

    “I live with CF but choose to live life to the fullest. My motto is “I Dare to Inspire!” I hope my journey inspires others to never give up.”

    Deanna Sutton
    Adult with CF
    Person with CF

    Washington,

    North Carolina

    “I live with CF but choose to live life to the fullest. My motto is “I Dare to Inspire!” I hope my journey inspires others to never give up.”

    Deanna Sutton
    Adult with CF
    Person with CF

    Washington,

    North Carolina

    “I live with CF but choose to live life to the fullest. My motto is “I Dare to Inspire!” I hope my journey inspires others to never give up.”

  • Skyler Bukaty

    “We love Filotimo family. We are so grateful for the support they have given us on our mission to start our family!”

    Skyler Bukaty
    Adult with CF
    Person with CF

    Gig Harbor,

    Washington

    “We love Filotimo family. We are so grateful for the support they have given us on our mission to start our family!”

    Skyler Bukaty
    Adult with CF
    Person with CF

    Gig Harbor,

    Washington

    “We love Filotimo family. We are so grateful for the support they have given us on our mission to start our family!”

  • Danielle Bukaty

    “The filotimo family has supported us through our IVF journey and through our pregnancy both emotionally and financially. We are so grateful!”

    Danielle Bukaty
    CF Ally
    Spouse of a person with CF

    Gig Harbor,

    Washington

    “The filotimo family has supported us through our IVF journey and through our pregnancy both emotionally and financially. We are so grateful!”

    Danielle Bukaty
    CF Ally
    Spouse of a person with CF

    Gig Harbor,

    Washington

    “The filotimo family has supported us through our IVF journey and through our pregnancy both emotionally and financially. We are so grateful!”

  • Noah Rivera

    “My brother and I both have CF. We are a living and breathing testimony. We are beyond blessed to be apart of the Filotimo Foundation family! 💗”

    Noah Rivera
    Adult with CF
    Person with CFSibling of a person with CF

    Smithfield,

    Virginia

    “My brother and I both have CF. We are a living and breathing testimony. We are beyond blessed to be apart of the Filotimo Foundation family! 💗”

    Noah Rivera
    Adult with CF
    Person with CFSibling of a person with CF

    Smithfield,

    Virginia

    “My brother and I both have CF. We are a living and breathing testimony. We are beyond blessed to be apart of the Filotimo Foundation family! 💗”

  • Ashlynn Jones

    “My story is one of resilience, gratitude, advocacy! From sharing my life too much online to becoming a mom-to-be! Follow along!”

    Ashlynn Jones
    Adult with CF
    Person with CFOrgan transplant recipient

    Rockport,

    Texas

    “My story is one of resilience, gratitude, advocacy! From sharing my life too much online to becoming a mom-to-be! Follow along!”

    Ashlynn Jones
    Adult with CF
    Person with CFOrgan transplant recipient

    Rockport,

    Texas

    “My story is one of resilience, gratitude, advocacy! From sharing my life too much online to becoming a mom-to-be! Follow along!”

  • Viktoria Coffey

    “My husband and I celebrated our first year of marriage this year and also Charlie’s 23 lung-iversary. Hoping for our first IVF transfer in Nov. 2026!”

    Viktoria Coffey
    CF Ally
    Spouse of a person with CF

    Shelbyville,

    Tennessee

    “My husband and I celebrated our first year of marriage this year and also Charlie’s 23 lung-iversary. Hoping for our first IVF transfer in Nov. 2026!”

    Viktoria Coffey
    CF Ally
    Spouse of a person with CF

    Shelbyville,

    Tennessee

    “My husband and I celebrated our first year of marriage this year and also Charlie’s 23 lung-iversary. Hoping for our first IVF transfer in Nov. 2026!”

  • Sarah Chester

    “My husband has CF, and through your program we were able to have our daughter Eleanor ❤️”

    Sarah Chester
    CF Ally
    Spouse of a person with CF

    Conway,

    South Carolina

    “My husband has CF, and through your program we were able to have our daughter Eleanor ❤️”

    Sarah Chester
    CF Ally
    Spouse of a person with CF

    Conway,

    South Carolina

    “My husband has CF, and through your program we were able to have our daughter Eleanor ❤️”

  • Megan Best

    “Hi! I’m Megan & I have CF! I’m a therapist in Wilmington and I have 3 kids, 2 cats, and a crazy Australian shepherd. I love to read and lift weights!”

    Megan Best
    Adult with CF
    Person with CF

    Wilmington,

    North Carolina

    “Hi! I’m Megan & I have CF! I’m a therapist in Wilmington and I have 3 kids, 2 cats, and a crazy Australian shepherd. I love to read and lift weights!”

    Megan Best
    Adult with CF
    Person with CF

    Wilmington,

    North Carolina

    “Hi! I’m Megan & I have CF! I’m a therapist in Wilmington and I have 3 kids, 2 cats, and a crazy Australian shepherd. I love to read and lift weights!”

  • Melissa Weiner

    “I was diagnosed with CF as a baby. Despite battling CF, CF Liver Disease, Micobacteria infections, kidney stones, and more, I’ve persevered!”

    Melissa Weiner
    Adult with CF
    Person with CF

    Reston,

    Virginia

    “I was diagnosed with CF as a baby. Despite battling CF, CF Liver Disease, Micobacteria infections, kidney stones, and more, I’ve persevered!”

    Melissa Weiner
    Adult with CF
    Person with CF

    Reston,

    Virginia

    “I was diagnosed with CF as a baby. Despite battling CF, CF Liver Disease, Micobacteria infections, kidney stones, and more, I’ve persevered!”

  • Grace Hotkewicz

    “Hello! I’m Grace! I’m a sustainable graphic designer with Cystic Fibrosis. I was diagnosed late at 14 years old, so it’s been an interesting journey!”

    Grace Hotkewicz
    Adult with CF
    Person with CF

    Boston,

    Massachusetts

    “Hello! I’m Grace! I’m a sustainable graphic designer with Cystic Fibrosis. I was diagnosed late at 14 years old, so it’s been an interesting journey!”

    Grace Hotkewicz
    Adult with CF
    Person with CF

    Boston,

    Massachusetts

    “Hello! I’m Grace! I’m a sustainable graphic designer with Cystic Fibrosis. I was diagnosed late at 14 years old, so it’s been an interesting journey!”

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