The Filotimo Family

We’ve never met a stranger. Adults with CF, social workers, doctors, fertility clinics, friends. They are all part of the Filotimo Family.

Three smiling men posing with their arms around each other beneath the finish line arch at the Lung Run charity event.

CF can be isolating, but you are never alone. Meet the people in our community.

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  • Alexis Smith

    “I was diagnosed with CF as an infant and I am now 36 years old! My mission is to help others living with this disease. We are in this together!”

    Alexis Smith
    Adult with CF
    Person with CFLost a loved one to CF

    Wilmington,

    North Carolina

    “I was diagnosed with CF as an infant and I am now 36 years old! My mission is to help others living with this disease. We are in this together!”

    Alexis Smith
    Adult with CF
    Person with CFLost a loved one to CF

    Wilmington,

    North Carolina

    “I was diagnosed with CF as an infant and I am now 36 years old! My mission is to help others living with this disease. We are in this together!”

  • Macyo Brown

    “I’ve been born with CF since birth, and I’m doing well. I’ve had zero surgeries & lungs are thriving I think due to the medications.”

    Macyo Brown
    Adult with CF
    Person with CF

    Bronx,

    New York

    “I’ve been born with CF since birth, and I’m doing well. I’ve had zero surgeries & lungs are thriving I think due to the medications.”

    Macyo Brown
    Adult with CF
    Person with CF

    Bronx,

    New York

    “I’ve been born with CF since birth, and I’m doing well. I’ve had zero surgeries & lungs are thriving I think due to the medications.”

  • Jaclyn Morgan

    “We are parents to three amazing kiddos, two of whom have CF and are thriving.”

    Jaclyn Morgan
    CF Ally
    Parent of a person with CF

    Greenville,

    North Carolina

    “We are parents to three amazing kiddos, two of whom have CF and are thriving.”

    Jaclyn Morgan
    CF Ally
    Parent of a person with CF

    Greenville,

    North Carolina

    “We are parents to three amazing kiddos, two of whom have CF and are thriving.”

  • Jeff Brown

    “I am 55 yrs old, with cf. In 1996 I co-founded Camp Funshine , we lasted 17 yrs. I just started a Youtube channel paying tribute to cf'ers we've lost.”

    Jeff Brown
    Adult with CF
    Person with CF

    Washburn,

    Missouri

    “I am 55 yrs old, with cf. In 1996 I co-founded Camp Funshine , we lasted 17 yrs. I just started a Youtube channel paying tribute to cf'ers we've lost.”

    Jeff Brown
    Adult with CF
    Person with CF

    Washburn,

    Missouri

    “I am 55 yrs old, with cf. In 1996 I co-founded Camp Funshine , we lasted 17 yrs. I just started a Youtube channel paying tribute to cf'ers we've lost.”

  • Stephen Libbey

    “I'm 57 years old and not sure how I got this far! The 70s and 80s were not the best times to have CF. I write, paint, play music, and follow good air.”

    Stephen Libbey
    Adult with CF
    Person with CF

    San Rafael,

    California

    “I'm 57 years old and not sure how I got this far! The 70s and 80s were not the best times to have CF. I write, paint, play music, and follow good air.”

    Stephen Libbey
    Adult with CF
    Person with CF

    San Rafael,

    California

    “I'm 57 years old and not sure how I got this far! The 70s and 80s were not the best times to have CF. I write, paint, play music, and follow good air.”

  • Keshoni Platt

    “I’m an artist from NC who’s lived with CF all my life. My biggest aspiration is to simply help and bring joy to everyone I meet.”

    Keshoni Platt
    Adult with CF
    Person with CF

    Selma,

    North Carolina

    “I’m an artist from NC who’s lived with CF all my life. My biggest aspiration is to simply help and bring joy to everyone I meet.”

    Keshoni Platt
    Adult with CF
    Person with CF

    Selma,

    North Carolina

    “I’m an artist from NC who’s lived with CF all my life. My biggest aspiration is to simply help and bring joy to everyone I meet.”

  • Ronny Webb

    “I’m the oldest of three siblings all 3 of us have CF. I’ve been married for 18 years and have a 10 yr old daughter. We own a roofing company.”

    Ronny Webb
    Adult with CF
    Person with CFSibling of a person with CF

    Castle Rock,

    Colorado

    “I’m the oldest of three siblings all 3 of us have CF. I’ve been married for 18 years and have a 10 yr old daughter. We own a roofing company.”

    Ronny Webb
    Adult with CF
    Person with CFSibling of a person with CF

    Castle Rock,

    Colorado

    “I’m the oldest of three siblings all 3 of us have CF. I’ve been married for 18 years and have a 10 yr old daughter. We own a roofing company.”

  • Casey McPhail

    “I’m a father to 3 adopted girls. I’m a graphic design hobbyist and aspiring athlete. I like to run, swim, hunt and fish!”

    Casey McPhail
    Adult with CF
    Person with CF

    Baytown,

    Texas

    “I’m a father to 3 adopted girls. I’m a graphic design hobbyist and aspiring athlete. I like to run, swim, hunt and fish!”

    Casey McPhail
    Adult with CF
    Person with CF

    Baytown,

    Texas

    “I’m a father to 3 adopted girls. I’m a graphic design hobbyist and aspiring athlete. I like to run, swim, hunt and fish!”

  • Deanna Proimos

    “We grew up treating my cousin like anyone else, but he’s always been extraordinary! From elementary math-a-thons to today, we fight for a CF cure!”

    Deanna Proimos
    CF Ally
    Friend of a person with CF

    Indianapolis,

    Indiana

    “We grew up treating my cousin like anyone else, but he’s always been extraordinary! From elementary math-a-thons to today, we fight for a CF cure!”

    Deanna Proimos
    CF Ally
    Friend of a person with CF

    Indianapolis,

    Indiana

    “We grew up treating my cousin like anyone else, but he’s always been extraordinary! From elementary math-a-thons to today, we fight for a CF cure!”

  • Harrison Thompson

    “I am an aspiring business owner with CF I Have the dream just to start a business to work and not be able to lose my job due to illness”

    Harrison Thompson
    Adult with CF
    Person with CF

    Greenville,

    North Carolina

    “I am an aspiring business owner with CF I Have the dream just to start a business to work and not be able to lose my job due to illness”

    Harrison Thompson
    Adult with CF
    Person with CF

    Greenville,

    North Carolina

    “I am an aspiring business owner with CF I Have the dream just to start a business to work and not be able to lose my job due to illness”

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