The Filotimo Foundation is Now on Instagram!January 16, 2025FilotimoNewsDear Friends, We are thrilled to share some exciting news — The Filotimo Foundation is now on Instagram! This new… Read More
Expanded Access to TrikaftaDecember 30, 2024FilotimoNewsThe FDA has approved the expansion of Trikafta to include 94 additional rare CFTR mutations, giving more people with cystic… Read More
FDA Approval: Once-a-Day CFTR ModulatorDecember 30, 2024FilotimoNewsThe FDA has approved Alyftrek (vanzacaftor/tezacaftor/deutivacaftor), a new once-daily CFTR modulator for people with cystic fibrosis (CF) ages 6 and… Read More
How a cystic fibrosis drug given prenatally changed the lives of one Stanford Medicine familyDecember 24, 2024FilotimoNewsThe article tells the story of a Stanford Medicine family who used a new cystic fibrosis (CF) medication, given prenatally… Read More
2025 Filotimo Foundation Fundraising GalaDecember 16, 2024FilotimoEventsPlease join us for the inaugural Filotimo Foundation Gala May 16, 2025 at 6:00pm The Pavilion at the Angus Barn… Read More
Survey Highlights the Burden of Health Care CostsDecember 14, 2024FilotimoNewsThis article highlights a 2024 survey by the Cystic Fibrosis Foundation and Dartmouth College that exposes the severe financial strain… Read More
Walk for HopeOctober 23, 2024FilotimoEvents36th Annual Thad & Alice Eure Walk for Hope Date: October 13, 2024 • 9:00am-2:00pm Location: Angus Barn Managing CF… Read More
Carrier ScreeningOctober 21, 2024FilotimoNewsStarting a family is a thrilling milestone. One important step in this journey is understanding any genetic health risks that… Read More
Newborn Screening in North CarolinaOctober 20, 2024FilotimoNewsNewborn Screening Newborns in North Carolina – and all 50 states across the country – are screened for a variety… Read More
Nicole’s Story: Starting a Family While Living with Cystic FibrosisOctober 19, 2024FilotimoNewsNicole “Colie” Kohr is an award-winning author, speaker, and advocate, known on social media as @cystic4real. Through her nonprofit, Colie… Read More
