Effective Date: February 24, 2026
The Filotimo Foundation (“Filotimo,” “we,” “our,” or “us”) is committed to protecting your privacy and handling your personal information with care, integrity, and respect.
Our mission is to support adults living with cystic fibrosis by providing financial assistance, family-building support, and community partnerships. Because of the sensitive nature of this work, we take privacy seriously.
This Privacy Policy explains what information we collect, how we use it, and how we protect it when you visit our website, apply for support, make a donation, or otherwise engage with us.
Information We Collect
Information You Provide Voluntarily
We may collect personal information that you choose to provide, including:
- Name
- Email address
- Phone number
- Mailing address
- Donation information
- Event registration details
- Information submitted through support or grant applications
- Communications you send to us
If you apply for financial or family-building assistance, you may provide additional personal, financial, or health-related information necessary to evaluate your request.
Automatically Collected Information
When you visit our website, we may automatically collect certain technical information such as:
- IP address
- Browser and device type
- Pages visited
- Time spent on the site
- Referring website
We may use cookies or similar technologies to improve user experience and understand website engagement.
How We Use Your Information
We use your information to:
- Respond to inquiries
- Process donations and provide receipts
- Send newsletters, impact updates, and event information
- Evaluate and administer assistance applications
- Improve our website and communications
- Maintain internal records
- Comply with legal and regulatory requirements
We do not sell or rent your personal information.
Email Communications
If you sign up to receive emails from Filotimo, we may send updates about:
- Program impact
- Family-building support
- Events
- Fundraising opportunities
- Ways to support adults living with cystic fibrosis
You may unsubscribe at any time by clicking the “unsubscribe” link in any email.
Sensitive Information
Because Filotimo supports adults living with cystic fibrosis, some applicants may voluntarily share health-related or financial information as part of a support request.
We treat this information as confidential and limit access to authorized personnel only.
Filotimo is not a healthcare provider and is not a HIPAA-covered entity; however, we apply heightened care when handling sensitive information.
Donations & Payment Processing
Online donations are processed through secure third-party payment providers. Filotimo does not store full credit card numbers on our servers.
We may retain donation history for tax, accounting, and stewardship purposes.
How We Protect Your Information
We use reasonable administrative, technical, and physical safeguards to protect personal information, including:
- Secure data systems
- Password-protected platforms
- Restricted internal access
- Encrypted payment processing
While no online system can guarantee absolute security, we take appropriate steps to reduce risk and protect confidentiality.
Sharing of Information
We may share information with:
- Trusted service providers who support website hosting, CRM systems, email communications, analytics, and payment processing
- Program partners when necessary to coordinate approved assistance (with appropriate consent)
- Legal authorities when required by law
We do not sell, trade, or rent personal information to third parties.
Cookies and Tracking Technologies
Our website may use cookies and similar tools to:
- Enhance user experience
- Analyze website performance
- Support marketing and outreach efforts
You may adjust your browser settings to refuse cookies, though some features of the site may not function properly.
Your Rights and Choices
You may:
- Request access to your personal information
- Request corrections to inaccurate information
- Request deletion of your information (subject to legal obligations)
- Opt out of marketing communications
To make a request, contact us at:
Info@filotimofoundation.org
Children’s Privacy
We do not knowingly collect personal information from children under 13 through our website. If we learn that such information has been collected without parental consent, we will take appropriate steps to delete it.
Third-Party Links
Our website may include links to third-party websites, including hospital partners, fertility clinics, adoption organizations, or social media platforms. We are not responsible for the privacy practices of those external sites.
Updates to This Policy
We may update this Privacy Policy from time to time. Any updates will be posted on this page with a revised effective date.
Contact Us
If you have questions about this Privacy Policy or how your information is handled, please contact:
Filotimo Foundation
2710 Wycliff Road, Suite G40
Raleigh, NC 27607
984-231-1680
Info@filotimofoundation.org
filotimofoundation.org