Lung Transplant Awareness & Fertility in the CF CommunityApril 1, 2025FilotimoNewsNational Donate Life Month and Fertility Awareness Month April is National Donate Life Month and Fertility Awareness Month, two crucial… Read More
Nutrition, Colorectal Cancer, and CFMarch 20, 2025FilotimoNewsMarch is a powerful month for raising awareness, bringing attention to both Nutrition Month and Colorectal Cancer Awareness Month. For… Read More
The Importance of Early ScreeningMarch 10, 2025FilotimoNewsAdults with cystic fibrosis (CF) face a 5–10 times higher risk of developing colorectal cancer (CRC) compared to the general… Read More
New Study Explores Long-Term Impact of ETI TherapyJanuary 23, 2025FilotimoNewsA study published in the Journal of Cystic Fibrosis examines the long-term effects of Elexacaftor/Tezacaftor/Ivacaftor (ETI) therapy on gastrointestinal (GI)… Read More
The Filotimo Foundation is Now on Instagram!January 16, 2025FilotimoNewsDear Friends, We are thrilled to share some exciting news — The Filotimo Foundation is now on Instagram! This new… Read More
Expanded Access to TrikaftaDecember 30, 2024FilotimoNewsThe FDA has approved the expansion of Trikafta to include 94 additional rare CFTR mutations, giving more people with cystic… Read More
FDA Approval: Once-a-Day CFTR ModulatorDecember 30, 2024FilotimoNewsThe FDA has approved Alyftrek (vanzacaftor/tezacaftor/deutivacaftor), a new once-daily CFTR modulator for people with cystic fibrosis (CF) ages 6 and… Read More
How a cystic fibrosis drug given prenatally changed the lives of one Stanford Medicine familyDecember 24, 2024FilotimoNewsThe article tells the story of a Stanford Medicine family who used a new cystic fibrosis (CF) medication, given prenatally… Read More
2025 Filotimo Foundation Fundraising GalaDecember 16, 2024FilotimoEventsPlease join us for the inaugural Filotimo Foundation Gala May 16, 2025 at 6:00pm The Pavilion at the Angus Barn… Read More
Survey Highlights the Burden of Health Care CostsDecember 14, 2024FilotimoNewsThis article highlights a 2024 survey by the Cystic Fibrosis Foundation and Dartmouth College that exposes the severe financial strain… Read More
