This article highlights a 2024 survey by the Cystic Fibrosis Foundation and Dartmouth College that exposes the severe financial strain faced by individuals with CF. Despite widespread insurance coverage, high out-of-pocket costs often force families to delay or skip essential treatments. Food and housing insecurities are common, and many feel embarrassed or unsure about seeking financial help. The findings emphasize the need for better support, clearer guidance, and open conversations with care teams to alleviate the financial burdens on the CF community.
